Palliative Care Appointment Realness

We met with Soraya’s palliative care doctor today. These appointments are always incredibly tough – it almost feels like they make things more “real”.

As hard as these appointments are, we are so thankful to have such a compassionate doctor to guide and support us as Soraya progresses. His commitment to her—and our family’s—care is especially evident in the questions he asks.

Today, he asked Soraya about her realization of knowing that her body is getting more tired.

He asked about how our family is doing with changing our life activities based on Soraya’s energy level.

He asked about how Safi and I are doing with working and managing the household.

It feels really nice to be asked these questions in the context of a patient/physician relationship (it doesn’t happen often). But at the same time, there’s a twang of pain because on the other side of his questions is the realization that he sees the changes Soraya is experiencing.

It’s almost like like my brain wants to deny that these changes are happening and believe that Soraya is stable. But when we’re meeting every 3-6 weeks and noticing this much change...in my heart, I know the truth of what is happening. 💔

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Muster, Magic, Stillness

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What Do You Say to Someone Who’s Grieving?