The Power of Community

I just want to say THANK YOU to all the followers who take the time to read, engage, and even reach out to HELP us.

A few weeks ago, I posted about Soraya’s nighttime routine which included manually relieving air from her abdomen multiple times a night due to the high pressures of her ventilator. There is a product called a Farrell Bag that can be connected to a g-tube to relieve pressure all night. However, Soraya had a lot of irritation and pain from drainage around her g-tube, so it wasn’t an option for us.

Jasmine Sturr saw our video and kindly mentioned a product SHE created that she believed could help Soraya. Jasmine also has a feeding tube and was tired of dealing with leakage/pain, so she used her skills as a chemist to create a solution: the StomaEase and StomaDisc.

This disc with the chemical powder that magically dries the g-tube site and allows Soraya to heal is INCREDIBLE. Soraya is in less pain and we are now able to use a Farrell Bag—meaning we can sleep in more than 2-hour chunks!!!!

Talk about a lifesaver!

This community has been so helpful to our family. This is the good stuff right here—talking about the hard things, holding space, sharing ideas with those who have never met you yet SEE you.

Thank you, Jasmine! There is power in community!

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Preparing to Embark On My Previvor Journey