Soraya is No Longer Attending School

I know it’s common to struggle with getting back into the swing of daily life after being on vacation, but WOW have these last few days been difficult.

The biggest reality check of all came this morning when Soraya told me she was too tired to go to school. She shared that going to school back-to-back days really adds up and makes her body more tired, and she just wants to rest.

She’s been on a modified schedule where she goes Monday through Friday for around 1.5 hours, attending extracurriculars like choir and having lunch with her favorite teacher Mr. Main, so learning this was a hard surprise. 💔

We went to see her pediatrician this afternoon and talked more about school there. She was able to share that she’s done going to school M-F, even on a modified schedule. She would like to attend school on Fridays when she has lunch with Mr. Main. Her doctor offered twice a week, but she’s just too tired.

This was so hard to hear. I love her self-advocacy but it crushes me that she is letting go of something we fought so hard for her to be able to do.

Also, let’s be real– I AM NOT READY. For any of it.

As Safi wrote after I told him I was sad Soraya was too tired for school – “It’s just so hard because it’s another step in the direction of finality.”

It’s so hard. SO HARD. But we will hear Soraya and honor her needs. One moment at a time…